Hemophilia of Georgia is a nonprofit organization dedicated to providing services and support for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders. The only agency of its kind in the state, Hemophilia of Georgia works to enhance clients' care and quality of life while actively pursuing a cure through research funding.
Hemophilia and other inherited bleeding disorders are conditions that require lifelong treatment. The severity of the disease determines how often someone needs to infuse to help prevent bleeds, which can be either external or internal. Between 50 percent and 60 percent of people with hemophilia have a severe form of the disorder.
Without treatment and the right education, internal bleeds - the ones you can't see - can be life threatening. Our outreach nurses and social workers help people with inherited bleeding disorders understand the signs and symptoms and teach them how to self-infuse and when to seek medical help. They also inform a child's school system and provide guidelines on what to do in an emergency.
There is no cure for these disorders, and treatments can cost anywhere from $300,000 to $1 million a year. Our goal is to help people with inherited bleeding disorders live productive, independent lives and offer them discounted prices on the medications they need to live a rich, full life.